Testimonials

This kind of online community which has numerous features such as blogs, social communities and surveys in a safe and secure environment, is not something we could have done on our own. Partnering with Inspire enables us to offer this great service and to fill a much-needed resource gap for those around the world affected by sarcoidosis. - Debbie Durrer, Executive Director, Foundation for Sarcoidosis Research

The Inspire features that were most appealing to us were the fact that the service provides lots of opportunities for people to communicate one-on-one and to meet each other, but it also has very important safeguards built in to protect the privacy of those who use it, to the best of our ability. - Mary Dunkle, Vice President of Marketing, National Organization for Rare Disorders (NORD)

We found that women with heart disease, and their families, benefit tremendously from the ability to connect with others through the Inspire-powered community. At the same time, Inspire's fully hosted solution did not require substantial investment in time and resources by WomenHeart. - Nancy Loving, Executive Director, The National Coalition for Women with Heart Disease

I think the ability for individual blogs, moderator support, and especially the capacity to have a community within a community (I also dream of having a separate Phone Buddy Volunteer community there to bring all those wonderful folks together--they are all over the country and have no way of knowing about each other! We have so many great volunteers and I think they could support each other as well!) are the most appealing aspects to me about Inspire's online community platform. - Maureen Rigney, Program Director, Lung Cancer Alliance

Families often say to us, especially those with rare or genetic disorders, that they want to be able to talk to other families who walk the walk-they want to share that valuable connection. They can do this with Inspire's online community platform. - Kathy Russell, Executive Director, The Children's Inn at NIH

I'm just so happy to have found such a supportive group. I am so encouraged by the upbeat fighting attitudes of the members here and with your loving concern for each other. Thank you for being here. I have a feeling I'll be logging in often. - Member, Lung Cancer Alliance Survivors Support Community

We will get through this together. You are the most amazing, hopeful, positive, loving group of people I've ever come across. - Member, Lung Cancer Alliance Survivors Support Community

For me, this group has been a Godsend. I have found that no matter the different diseases, the conditions, the dxs or lack thereof; we're all searching.....for answers, help, or a feeling that we're not alone. We all feel differently - some similar emotions, some not - but the trials that come with having or not having a dx, caring for someone with a particular illness, or searching for answers that accompany different conditions - we do understand what that's like because we have all been at a similar place. - Member, NORD Support Community

I really think it's great and I like it very much. I just wish you started this last year when I had my heart attack. After my heart attack I truly felt all alone. It would be nice if I had, had someone to talk with. It's very hard thing to be dealing with...Your life will be changed forever. Thanks again --- Keep up the good work. - Member, WomenHeart Support Community

I just found this group. This is a great opportunity to share information, what works and what does not. - Member, The Children's Inn Support Community

I agree with you this site is wonderful. It has helped me so much. - Member, Lung Cancer Alliance Survivors Support Community

I too am new(ish) here but have found so much support, information and just good old caring that it has become a place I visit every day. - Member, Lung Cancer Alliance Survivors Support Community

I am so thrilled to have found this web site. I have been encouraged and inspired by so many of your stories! Thank you all so much!! - Member, Lung Cancer Alliance Survivors Support Community

It really helps to know that there are people who have gone through, or are going through, very similar situations to mine. I especially enjoy hearing that people have beat the odds and that even though the treatment is tough you can still have "good" days. - Member, Lung Cancer Alliance Survivors Support Community

I find this to be the most interesting and helpful website for people with lung cancer. I just wanted you to know that you are appreciated. Thanks! -Member, Lung Cancer Alliance Survivors Support Community

This site has helped me alot. I read the blogs and my heart goes out to each and everyone who has been or going thru this as a patient or as a caregiver. - Member, ALS Advocacy Support Community

I am so glad to be able to connect with others that have similar experiences as our family. Thanks so much for connecting with me and sending all your kind thoughts and concerns. - Member, Children's Inn Support Community

I can't believe I stumbled across this website this afternoon after being awake most of the night with my feverish daughter. Finally, after just reading this discussion, I don't feel so alone in this journey with TRAPS. - Member, Children's Inn Support Community

This board is so wonderful and very important to me. Thanks again. - Member, Lung Cancer Alliance Survivors Support Community

My name is Michele and I just wanted to say that I feel so blessed to have found this website. It has given me so much hope when I didn't think it was possible. - Member, Lung Cancer Alliance Survivors Support Community

This is an absolutely wonderful web site. It has been so helpful to me - much better than any of the support groups that I have found in my area - none that don't require a two hour one way commute. - Member, WomenHeart Support Community

This is a great web site. Thank you for The Foundation for Sarcoidosis Research. It is obvious with the resources on this site that a great deal of time, care and work is afforded to make this foundation useful and helpful for all that use it. May your rewards be many. Thank you again. - Member, Stop Sarcoidosis Support Community

I agree with you about the site. I just found it in November. It is great to find out that you are not the only one, which is how I felt for so long. I have not posted (till now), but have received lots of information from reading. - Member, Lung Cancer Alliance Survivors Support Community

You will find that this site quickly becomes like a second family. Last evening, my husband and I were driving in the car and I was updating him on all my onsite friends and their progress or lack thereof. It is a place of caring and learning. God Bless those who created it. - Member, Lung Cancer Alliance Survivors Support Community

I came to the Rare Disease community reluctantly. I'd rather be blogging about surfing, hiking, art or music - which sometimes I do, but these days my life is more about Systemic Mastocytosis than much of anything else so I find myself here. - Member, NORD Support Community

I thought I was walking in on something very odd when I showed up here for the first time, hoping that I wouldn't belong. But what I have found is honesty, love, understanding, and people who are willing to share their ideas on how they cope with life in the strange world of rare disease. - Member, NORD Support Community